We said we would include a summary of the Forum meeting on benefits. The following was written for people who use services, but will be of interest to carers. We know that carers have separate concerns – especially about not knowing about letters.
Cllr Pearson, Andy Woods (DASH), Chris Molyneux (Voluntary advisor at Warrington Disability Partnership) and Jen Bartion (St Helens Benefit Contact Centre) spoke to the Forum members about the current difficulties around Employment Support Allowance (ESA) and the Work Capability Assessments (WCA).
ATOS is the organisation carrying out WCA which is supposed to make sure people are on the right level of ESA. (Lots of acronyms there – but we need to learn this language).
ESA is a big problem for many people at the moment, with a lot of people being found ‘fit for work’ when they don’t feel they are ready. In mental health, we don’t make our problems clear to the assessors.
The ATOS assessors can only judge on what they see, but we try to act as well as possible. We all do it – we might be having a good day, we’re proud of what we can achieve, we don’t want people to see us at our worst. But if that’s all that ATOS see, that’s what they make their decision on.
People who are experiencing mental health problems of any kind, including the side effects of medication, can feel confused and unable to concentrate. We don’t like to admit the worst of our symptoms because of stigma and discrimination. No one wants to admit a psychosis that makes them behave in unpredictable ways – but we shouldn’t deny it on these forms. We need to say it how it is.
The Benefit Contact Centre has details of all local organizations and are very helpful. They have private interview spaces. Their contact number is 01744 676666
REMEMBER: Forewarned is forearmed.
-
You are not on your own.
-
Everyone is being sent a questionnaire – get help to fill the form in, or to look at it, before you sign it.
-
Keep a diary – to remember how your week is going – so that you can remember just how your problems affect you for when you fill the forms in.
-
Don’t include your phone number if you don’t feel able to speak on the phone. And don’t feel you must answer phone calls. Let them know in writing if you prefer to communicate in writing.
-
You MUST attend the assessment.
-
If you disagree with their decision you can appeal – get support.
-
There are many local organizations who can help or signpost you to someone who can help. CAB can signpost, as well as the organizations here today. Helena Homes have a good service for their tenants.
-
There are sites on the internet including Benefits and Work who have very good leaflets. Some are free while others need a subscription. The Forum will look into subscribing. http://www.benefitsandwork.co.uk/